fear...

There's a C.S. Lewis quote that I've probably posted here many many times. In it he says that no one told him grief felt so much like fear.

There is so much fear.

It occurred to me last night that the ever present pain now has a close companion. Fear, fear, and more fear...

There are the fears you probably expect.

When I rock my rainbow before bed it always takes many minutes of talking myself into laying him down because of the fear that he wont wake up. When he wonders into another room and I realize that he is quiet my heart screams every step to find him because I fear that something horrible will have happened. Every four months when the blood work comes back I fear the worst. I fear that his body will start losing a battle with the world...

There are those fears, then there are these:

I fear conversation. I fear small talk and "how are you?" I fear being alone because it is then that the darkness can find me but I fear being with people because I can't fake it like I used to. I fear losing yet another friend because I am just too much to handle. I fear people's unconsidered, thoughtless, or judgmental words... because they hurt like hell. I fear those many, many moments when the words just wont come, when I can't remember why I am where I am, or what the names of things are. I fear being perceived as a jerk because I just can't operate in the world like you can. I fear the panic attacks, the helplessness, the ever crashing waves. I am terrified to celebrate that my rainbow has turned TWO because what if that is the end? What if whatever force or being that runs the world notices that he is growing, and loved, and helping to heal his broken parents?

My world is entirely ruled by fear and I have no idea what to do about it.
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I know no other thing to say but to ask again that you, who allow this kind of pain and confusion into your life when you read my words, be kind because everyone you meet is fighting a hard battle.

I hurt... I fear... I hurt...

Until next time...