Wednesday, May 8, 2013

NICU


Raz was born 15 days ago, six weeks premature.

I don’t think I’m ready to write about it. The abject terror is still far too near with ECG leads, oxygen monitors and a feeding tube all seemingly permanently affixed to my newborn. I need him to be out of the NICU then maybe I can write about that night, not yet.

We’ve been here for two weeks, living in this tiny room, watching monitors flash his vital signs and celebrating each small victory when a tube was removed. I hadn’t cried. I hadn’t let the memories of the last time I was in a room like this surface. I was in survival mode… until last night.

Last night for the millionth time his alarms screamed, his heart rate dropped and he stopped breathing. I was trying to feed him at the time, something so simple. I was just trying to feed my baby. Except he’s a preemie and he’s still figuring out how to breathe, eat, and keep his heart beating. The sixth or seventh time his alarms went off and I had to desperately rub his tiny little back to get him to breathe I broke.

I stood in his room completely paralyzed as the tsunami hit and I was suddenly aware of how incredibly warm and wet my face was. I sat in the lobby of this hospital and cried and cried and cried. I finally let the memories come. I mourned Damon and I hoped for Raz and I cried.

I don’t usually let people see me cry, like almost never. It’s not a pride thing. I’m not ashamed of my tears. They are necessary. I’ve figured out that I don’t let people see me cry because people want the crying to stop. People think that the crying should stop, as if that is some measure of the comfort they have given. When I cry no amount of comfort will make it better, no words will heal, no presence will soften the ache. I cry because I need to cry and I need to cry until I stop. So, I usually cry alone so I can be free to hurt, to be exposed, to be pissed, to be so deeply wounded it cannot be explained.

Last night there was nowhere to go. So, I sat in the lobby, while people came and went, and cried.

Today, as always after I’ve let myself look at the gaping Damon shaped hole in my heart, I’m raw. I’m ragged. I miss him so much.

When Raz was born a warm new light bloomed in my heart. It sits next to the icy hole of pain created by Damon’s death. Before, I never would have imagined both sensations could coexist, but they do. My happiness and love for each of my guys lives with the horrifying pain of Damon’s loss. They influence each other but they are each independent and unique entities. Raz’s birth, his life, is good and beautiful and in no way lessens the ache for Damon.   

From the NICU, until next time…

Sunday, April 21, 2013

Never quite there


I’m laying here staring at an empty crib…

This crib is almost an exact replica of the one that stands empty in the next room, only smaller, so as to fit in our room, next to our bed. I just keep staring at it, as if it is going to help me… as if it will explain what the hell is going on. It wont.

We went to a movie today. We debated this venture. Our small group got together to see the movie. We weren’t sure if I could handle it. Movies have the tendency to purposely push your emotional buttons and mine are so raw a sideways look can set me off. Ultimately Will left it up to me. I wanted to go… I wanted to be with our friends. I wanted some normal.

I don’t know that it was a bad idea but the choice certainly had some repercussions. A tsunami has been pulling water out into that endless ocean of pain for a while now. I knew it would be crashing soon. Soon was today, soon is now.

In the movie the main character visited two graves repeatedly. In the emotional climax the sight of the grave markers was more than I could handle. Crash. The roar of unbearable pain deafened me. My child is in the ground. For most people that was just an emotional scene, for most people the fact that a wife in the movie buried her husband and a child had his father torn from his life add richness to a plot that ties up in a pretty bow at the end. Not for me. For me the image of leaves covering a grave marker is all I can see.

MY life doesn’t tie up in a pretty bow. There is no nice resolution. My son is dead. There is a hole in my heart that will never be filled. I hurt. I hurt. I hurt.

I stare at one empty crib that waits for new life. It is empty in anticipation. Every. Single. Day. I pass a crib that is empty with loss. Representations of the duality that is my world.

Normal is so confusing. I live perpendicular to the world. I see green where you see purple and hear screams where you hear music. It is so hard to walk here, never quite there.

From under the waves, until next time…

Monday, April 8, 2013

Rainbow baby


I haven’t written much about my pregnancy. I haven’t talked about it much either. It’s April, the month after hell month, the month before our “Rainbow baby” is born.

Like everything in life now this pregnancy is fraught with contradictory emotion. I swing from elation every single time I hear his heart beat to absolute conviction that something has or will go terribly wrong. I swear my Obgyn’s office has my number on speed dial I call so often and my friend who is a labor and delivery nurse probably wishes she’d never given me her number!

What if he looks like Damon? What if he doesn’t? What if I call him the wrong name? What will it be like for a child to enter a family after the loss of his beloved brother? Will I be able to give him room to be Raz or will I always see his brother?

There are a million things that could go wrong. A million things between now and his birth. A million things during those few crucial hours and as we know agonizingly well, a million things every day for the rest of his life. I no longer get to live in that comfortable place assuming my children will be ok. Terror fills every minute. What if?

A friend asked me today what we need to be ready for Raz…

Well, everything. We haven’t let ourselves believe it. We haven’t let it be real. We keep saying to each other ‘ok, we need this and this and this and we need to get ready for this baby.’ Then we just end up staring at each other, paralyzed. We are so afraid, so afraid.

I stood in a local store the other day, staring at the diapers. I had a coupon for diapers. I stood and stared. I couldn’t buy them. I walked out with my heart in my throat thinking ‘at some point, Jodie, you will have to venture into the baby section. At some point you will have to buy diapers and wipes and onsies….’ That point hasn’t come yet because I want so desperately to by buying pull-ups and 3T clothes.

Our amazing family (no blood relation but they are) is throwing us a baby shower this month. Wow… this is getting real ya’ll. So afraid.  So afraid.

Until next time…

Thursday, April 4, 2013

My people


You know, when I sit down here and put my fingers to the keys I have no idea what will come out. Sometimes I have thoughts banging around in my head that I intended to “put to paper” and I walk away realizing they didn’t ever make it to the page. My writing has a life of its own, its own course, its own personality. Sometimes I surprise myself.

Today I’ve been chewing on relationships… people…my fear of relationships and people… juxtaposed against my desire for relationships and people. Nothing like an introvert immersed in profound grief with PTSD to make things super complicated.

So, here’s the bottom line. I love my people. Like, really, really, really love them.

There are more things than I could even begin to count that I’m unsure about, foundations I thought were rock solid that have crumbled, questions I never thought I’d ask and beliefs I’m not sure I hold anymore. But here’s one thing I know, however deeply flawed, the church has held me up, tended my wounds, held me together and let me fall apart.

NOT the building. NOT the communion plates. NOT the old songs. NOT the new songs. NOT scripture memorization or regular attendance (Lord knows I haven’t darkened the door of the building in over a year), or prayer meetings, or programs. The church.

The people who haven’t given up on me. The people who pulled our first Damon’s dance fundraiser together. The people who pick Isaiah up on Wednesday nights and take him to class. The people who covered our yard with signs telling us how loved we are. The people who grab my husband and take him to hang out. The people who randomly bring me Dr. Peppers. The people who haven’t pulled back and protected their hearts from my sorrow. The people who hear my anger and bitterness and just let it be. The people…

I love my people. My heart clenches as I write this. I love you.

Until next time…

Saturday, March 30, 2013

shifting sand


What do I do? What do I do when I have no idea what to do, when the spinning in my head won’t stop and my body won’t move? I come here, here to the blinking cursor and I write. I write and I write…

I’m devastated today. Saturdays are usually ‘good’ days. When I open my eyes my husband is still beside me. We spend the morning lying in bed, talking, not talking, whatever until hunger drives us out. He’s home. He doesn’t have to drive an hour and fifteen minutes to teach Zoology or Physiology. He’s mine. It’s one of my favorite times.

But lately my restlessness has been nearly impossible to quell. I can’t sit still… but there’s nothing to do.

The past month things inside of me have started to shift. It’s been confusing. It’s made me irritable and even more irrational. I’m naturally an introvert. I think that would surprise a lot of people but it’s true. Even in college I was much more contented on my bed with a good book than mingling with the crowds. When I’m wounded my reclusiveness is amplified and after Damon’s death I was completely nonfunctional. People, probably more than anything, freaked.me.out. I could not converse. I’ve never been good at ‘small talk.’ I’m far too impatient and blunt. I think a lot of things that people are so concerned with are downright stupid (always have) but for the past year it wasn’t just that I didn’t like it I couldn’t do it.

I couldn’t think. I didn’t care.

But here I am realizing that for the last few weeks I’ve undulated between craving human interaction and being thoroughly confused by the feeling. I’ve been thinking things like ‘who am I?’ ‘what do I have now?’  I’m jealous of my husband who has a purpose every day, who gets up and goes to a job, who uses his mind and his education, who single handedly supports us. I want to contribute. I miss having a life… and for that I feel guilt. 

The new person I seem to become every few months confuses me. Nothing is stable inside of me, everything is shifting sand.

Fear… it rules my life. To do anything is to battle it and often to do nothing is to succumb.

What if I can’t? What if I try and I fail? Fear…

I’m not who I was… who do I want to be? I have to remake myself according to an entirely new set of rules and I have to do that without my child. Can I?

This sucks. Today is black… deep, dark, black.

Until next time.    

Thursday, March 28, 2013

What love looks like







 I don't have a picture of the people who prayed for 24 hours or the circle of friends who stood on our front lawn and sang last night while we sat on out bed and sobbed but that's what love looks like.

Sunday, March 24, 2013

Damon's Dance Application

The application is finally up. Thanks so so many people's hard work we have $10k to give away to adoptive families. Hanging on to this good for dear life.

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Apply!!!!

Damon's Dance Adoption Application link